Multiple Sclerosis Q & A Reassuring Answers to Frequently Asked Questions

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Format: Paperback
Pub. Date: 2003-11-10
Publisher(s): Avery Trade
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Summary

An insightful, informative, and empathic resource for learning to live well with multiple sclerosis. This comprehensive yet accessible work provides authoritative and reassuring answers to the many questions that overwhelm those undergoing testing and treatment for multiple sclerosis. It discusses traditional and complementary therapies for MS; explains medical terminology and diagnostics; and compassionately addresses the lifestyle changes many patients face while learning to manage this chronic and potentially debilitating disorder.

Author Biography

Beth Ann Hill, who was diagnosed with multiple sclerosis in 1999, has become a tireless patient advocate active in the National Multiple Sclerosis Society.

Table of Contents

Foreword by Dr Joanne Wójcieszek xiii
Introduction xv
PART I: MY STORY 1(12)
PART II: QUESTIONS ANSWERS ABOUT QUESTIONS MULTIPLE SCLEROSIS 13(74)
Defining Multiple Sclerosis
15(11)
What is multiple sclerosis?
What causes MS?
But can't some diseases have more than one cause?
Why does MS occur?
Is MS similar to AIDS?
Can I get MS from my spouse?
What are the different categories of multiple sclerosis?
What is "silent" MS?
What is an attack?
What causes an attack?
Why do some attacks produce permanent damage but others don't?
Can stress cause an attack?
Can illness cause an attack?
What is a "pseudo-exacerbation"?
Can exercise cause an attack?
Can the nervous system repair itself after an attack?
When I tell people that I have relapsing-remitting multiple sclerosis, they ask if I am in remission. I don't know how to answer. I'm not having an attack, but I sure don't feel like I'm in remission.
History and Statistics
26(4)
How long has MS been around?
Who discovered MS?
Who gets MS?
How many people have multiple sclerosis?
At what age does someone usually develop symptoms of MS?
Is MS more common in certain parts of the world?
Does where you grew up make a difference in your susceptibility to MS?
Is MS an inherited disease?
Is there an MS gene?
Symptoms
30(12)
What are the symptoms of MS?
What kind of vision problems could I possibly develop with MS?
I was recently diagnosed as having optic neuritis by my ophthalmologist. Does this mean that I will develop MS?
You mentioned altered sensations in the list of possible symptoms. What kind of altered sensations are you talking about?
Do people with MS experience pain?
What is spasticity?
What is tremor?
What is vertigo?
What about fatigue?
Is fatigue a common symptom of MS?
What kind of cognitive impairment problems can MS produce?
Can MS cause depression?
What kind of bladder dysfunction can MS cause?
What kind of bowel problems can MS cause?
What kind of sexual problems can MS cause?
Can an MS symptom last for just a short period of time?
What course will my disease take?
Can MS "burn out"?
Will I end up in a wheelchair?
Can MS be cured?
When do experts believe a cure will be found?
Diagnosis and Medical Tests
42(8)
How is a person diagnosed with MS?
Can MS be mistaken for other illnesses or vice versa?
My doctor just told me that I have MS. I think I've had MS for years! How did he arrive at this decision now?
What are the medical tests that are used to pinpoint MS?
What can I expect during an MRI?
I've had an MRI, but nothing showed up that was abnormal. Does this mean I don't have MS?
What can I expect during a spinal tap?
What can I expect during an evoked response test?
Are there any new tests being developed to help diagnose MS?
Treatment
50(18)
How can I find a good neurologist?
Which drugs are used to fight MS?
Can someone take one of these medications if they have "probable" MS?
Which of the disease-modifying medications should I choose?
My insurance doesn't cover any of the disease-modifying medications! What should I do?
Are oral versions of these drugs available?
What about combining medications?
What about Novantrone?
Can someone with progressive MS take Avonex, Betaseron, Copaxone, or Rebfif?
Is there anything else that is being done for people with secondary-progressive MS?
Are there any new medications on the horizon?
Which medications are used for major attacks?
Are there any side effects from being treated with corticosteroids?
What other medications are used to treat the symptoms of MS?
What kinds of therapies are available to MS patients?
There are so many illegitimate claims of curing MS. What about alternative practices?
What are some alternative therapies for MS?
Will a special diet help my MS?
Will vitamins and minerals help my MS?
What are megavitamins?
Will they help my MS?
Will medicinal herbs help my MS?
Do amalgam dental fillings cause MS?
Will having the fillings removed make my MS go away?
Family Issues
68(6)
We would like to have children. Is this still a possibility?
How does pregnancy affect MS?
Can any of the disease-modifying drugs be used during pregnancy?
Right before I have a period, my MS symptoms worsen. Is there a correlation?
Will I give MS to my child?
Can family counseling help?
What's the best way to tell children about MS?
How do I help my children cope with my disease?
Are there any other suggestions that you have for coping with multiple sclerosis?
Lifestyle Changes
74(10)
Does heat make the symptoms of MS worse?
I love taking hot bubble baths! Can I still do this?
What about saunas or hot tubs?
If I have MS, can I get a flu shot?
Should someone with MS rest?
Should someone with MS exercise? Will it help?
What exercises are recommended for people with MS?
Can I still drive?
Can I drink alcoholic beverages if I have MS?
Who should I tell that I have MS?
Should I work?
Should I quit my job?
Can my employer discriminate against me because of my MS?
Other Relevant Questions About Multiple Sclerosis
84(3)
What is NARCOMS? Is it legitimate? Should I register?
What about the National Multiple Sclerosis Society?
What can it do for me?
PART III: SUGGESTIONS 87(10)
What to Do if You Think You Have MS but Haven't Yet Been Diagnosed
89(2)
Twenty Things to Do if You Have MS
91(2)
Suggestions for Friends of MS Patients
93(2)
Suggestions for the Spouse or Significant Other of an MS Patient
95(2)
Conclusion 97(4)
Appendix: List of MS Clinical Facilities Affiliated with the National Multiple Sclerosis Society 101(24)
Glossary 125(4)
References 129(2)
Resources 131(6)
Index 137

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